Missouri Fibromyalgia and Chronic Pain Together Walk

September 22, 2018. Raise awareness for fibromyalgia and chronic pain sufferers. We need a cure, and the way to find one is by walking one step at a time.
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This campaign successfully reached its funding goal and ended 4 days ago
103% Funded
  • $980.00 Donated
  • $950.00 Goal
  • 15 Donors
Time left to donate

About the Event

If you would like to donate to this walk, click HERE

This campaign is to empower all of the sufferers in our various cities to keep pushing. Sky is the limit, we have to fight through our pain to find a cure.

Interested in advertising, sponsorship, or exhibitor opportunities? Contact the Missouri Together Walk team at cleyland@practicalbioethics.org  or (816) 979-1357.

Where: English Landing Park in Parkville, Missouri
Address: 8701 McAfee Street, Parkville, MO  64152
Date:     September 22, 2018
Price:    $35 (includes T-shirt)
Program: 
                 2:30 Early-bird registration & check-in
                 3:00 Registration & check-in
                 3:00  Welcome, Inspiration & Encouragement
                 4:00  Magical stroll along the river walk for Fibromyalgia
                 5:30 Speakers and vendors
                 7:00 Closing ceremony awards & raffle
Speakers:

Georgia Weston is the Founder and Executive Director of the Teen Pain Help Foundation, a 501(c)3 charitable corporation created to help children and adolescents with chronic pain by raising funds for treatment, research, education, and increased public awareness. She is the author of two books, Vienna’s Waiting and PAIN: An Owner’s Manual, where she provides insight into the mysterious world of chronic pain through her own story and the story of others. She also co-founded and was the Director of Programming for Art Rx, strengthening the partnership between the USC Suzanne Dworak-Peck School of Social Work and the USC Keck School of Medicine, specifically to better understand how art impacts pain. She has a Master of Social Work degree from the University of Southern California, with a concentration in Children, Youth, and Families, as well as a specialization in Child and Adolescent Mental Health. Georgia is a therapist at a boys’ probation facility where she provides mental health services to adolescents who are currently in the juvenile justice system and their families. Georgia has experience creating and leading art workshops for organizations that provide therapeutic services for individuals with complex cognitive, behavioral health, and social needs.

Bob Twillman, Ph.D., is the Executive Director of the Academy of Integrative Pain Management (formerly the American Academy of Pain Management).  In that capacity, Dr. Twillman is responsible for guiding the organization in its efforts to promote an integrative approach to managing pain.  He formerly served the Academy for four years as its Director of Policy and Advocacy. Dr. Twillman received his Ph.D. in Clinical Psychology at the University of California in Los Angeles, and maintains a volunteer faculty appointment as Clinical Associate Professor of Psychiatry and Behavioral Sciences at the University Of Kansas School Of Medicine in Kansas City, KS.  Prior to working for the Academy, Dr. Twillman was a full-time faculty member at the University of Kansas Medical Center, where he founded and directed the inpatient pain management program and was a co-founder of the hospital’s Palliative Care Team.  Dr. Twillman also served for many years as Chair of the Prescription Monitoring Program Advisory Committee for the Kansas Board of Pharmacy. 

Kimberly Nelson is the Substance Abuse and Mental Health Services Administration Regional Administrator serving Region 7: Kansas, Iowa, Missouri, and Nebraska for the. Ms. Nelson is a licensed addictions counselor with a master’s degree in public administration from the University of Kansas and has worked in the behavioral health care field since 1992. Ms. Nelson has worked in health care for all of her professional career, primarily in the area of behavioral health as an addictions and managed care contract professional. Ms. Nelson’s clinical work was early in her career and mainly focused on addiction services, initially in community-based settings in women’s and children’s residential programs in Kansas. She then moved into executive leadership roles primarily. Ms. Nelson provided leadership as program director in programs with criminal justice clients in community-based residential and outpatient settings, as well as with prison-based therapeutic communities. Ms. Nelson is a licensed addictions counselor and earned her bachelor’s degree in sociology and her master’s degree in public administration.

About the Organizers

As the Director of Program Operations and the PAINS-KC Coordinator at the Center for Practical Bioethics, Cindy Leyland oversees creation, implementation and management of administrative, financial, and operational systems and processes in support of executive and program leadership needs. She also supports resource development through prospect identification and management, grant writing and management. A highly skilled project director, she was also responsible for day-to-day operations, budget oversight and grants management for the Pain Action Alliance to Implement a National Strategy (PAINS) team, and she continues to lead the Citizen Leadership Group of PAINS-KC.

 

Because of the way pain is woven into her daily life, Cindy makes purposeful choices that begin with just getting out of bed in the morning. She puts her alarm clock across the room so that she HAS to get up and turn it off. She pushes herself through the day with purpose. She carves out time in her weekends to appreciate her husband, her children and grandchildren with purpose. Cindy admits that she pushes herself too hard on many days. After all, being purposeful doesn’t mean being perfect.

 

Cindy’s favorite phrase is “hide and watch.” Anyone who takes that challenge will be quite surprised. Pain may punctuate her days, but purpose is what fills in the spaces between. Living a life with hope and purpose is the strength she brings to her work. It is the gentle gift she holds for those who live with pain and their caregivers… patience, perseverance, and purpose.

Hello, I’m Racquel Wright, a fiance’ and mother, Travel Agent, Independent Consultant for Tastefully Simple and a team member of Church Funeral Associates, I’m one of the organizers in Kansas City, Missouri’s Together Walk 2018. In conjunction with the NFCPA and Pains-KC, I have the privilege of hosting a Magical Stroll along the River Walk. I was diagnosed with fibromyalgia in 2006; while my illness has progressed over the years, I do not let it stop me. My goal for this event is to raise awareness and funds for research to help researchers find a cure.

2018 Missouri Together Walk Teams

By joining my team, you’ll be moved by the power of the purpose, which is trying to find a cure for Fibromyalgia. You’re joining a fun, positive and enthusiastic team that have a positive impact on the community.

Amount
$35

PAINS-KC – Giving voice to those who live with pain! PAINS-KC is recognized as a premier citizen leader advocacy group in the country – join us now!

Amount
$205

3 Gals or 3 Generations, working to make a difference in the lives of people who live with chronic pain and having a good time in good company while working for a good cause = 3G

Amount
$205

Click HERE to create a team and walk together with friends and family at the 2018 Missouri Together Walk!

Amount: $525

Registrants/Donors: 15

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Registrants/Donors: 0

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